Category Archives: Uncategorized

Please Don’t Take My Funny

Written on June 22, 2016 at 10:01 pm, by

The list of elements of daily living that ALS tenaciously takes away is never-ending. There’s the big stuff like walking or use of your arms, the deterioration of your voice and ultimately the ability to breathe. Let’s call that the big, ugly, hairy, nasty stuff. But below that catastrophic category is all of this slivers Read More

How I Happily Became a Junkie Again

Written on May 27, 2016 at 10:03 pm, by

Before last Christmas, I would look around any room full of people and notice one thing they all had in common. And I mean from my living room to a crowded coffee shop. Everyone was on their phone! IPhones, Androids, it didn’t matter, people’s faces were lazer locked on their devices. Now, I’m not judging Read More

My ALS by the Numbers

Written on May 24, 2016 at 10:05 pm, by

20 – It takes approximately 20 minutes for me to get out of bed every morning. I know what you’re thinking, “Me too, after I hit snooze a couple of times.” But it literally takes 20 minutes from the time my caregiver walks into the room to the point where I am vertical, in my Read More

Amazing Race Ain’t Got Nothing on ALS

Written on October 13, 2015 at 10:07 pm, by

The pope, the president and I walk into a bar. Ok, it didn’t go exactly like that but you get the idea. A couple weeks ago we had our foundation’s fourth annual culinary spectacular at Hearth restaurant in New York City. We thought we had the perfect date picked out, after Labor Day but before Read More

The Cubs Are Doing What Modern Medicine Isn’t

Written on September 24, 2015 at 10:10 pm, by

Being a child of the ‘80s and growing up in Florida, when it came to baseball there was really no other team to root for other than the Chicago Cubs. Before the Miami (formerly the Florida) Marlins and way before 500 cable channels to choose from, there was good old WGN. If you’re not familiar Read More

The Summer Sequel You MUST See!

Written on July 22, 2015 at 10:17 pm, by

I have always been a movie guy. As long as I can remember, the entire movie-going experience has been a source of excitement and escapism. When I lived in New York I had a Saturday morning ritual: 1 medium coffee – milk and sugar and 1 chocolate glazed donut from a little known bakery on Read More

A Great Example of Community Support

Written on June 25, 2015 at 2:03 pm, by

Last weekend was the third annual Running 4 Rob 5k event to support our family. This all started in 2013 when Melissa wanted to get a group of friends to participate in the Team Gleason Virtual 5k and run together at Bluff Point in Groton, CT. Our friends did sign up for the Team Gleason Read More

Advocates Come In All Different Shapes… And Sizes

Written on May 29, 2015 at 2:58 pm, by

This is a perfect example of how a movement begins. Awareness can start with one person, even an 8 year old. We are so proud of Vivian and grateful for her effort and dedication.

A Breathtaking View 100 Ft Below Ground

Written on May 27, 2015 at 4:02 pm, by

After living in New York City for almost 7 years, I feel like I am very familiar with most neighborhoods and certainly the many iconic buildings throughout Manhattan…or so I thought. I recently visited the city with my girlfriend, Elizabeth, and her 14-year-old son, Cullen. Elizabeth and I have been there before, but this was Read More

ALS and the Community

Written on May 27, 2015 at 3:41 pm, by

We live in a small, rural town where pretty much everyone knows or at least knows of everyone else. Other than three years, I have lived here my whole life. There can certainly be downfalls because of this but the positive experiences outweigh the negatives by far. We waited a few months after my diagnosis Read More