ALS doesn't define who you are. It's just part of your life story.
View the videos of others PALS who believe the same and are rewriting their own ending. And send us an e-mail if you believe you have one for us to feature, as well.
A Life Story Foundation’s mission is to raise awareness, innovate and implement new education and outreach programs, and create action to discover effective treatments, and ultimately a cure for ALS.
Currently ALS is a fatal disease with no known cause. It rapidly robs a person of the ability to walk, speak, and ultimately breath, while the mind remains fully intact and imprisoned.
Shortly after his diagnosis with ALS in 2012, founder Kevin Swan quickly realized howfew people knew of this devastating disease and that it seems to attack the best and brightest members of our communities. He has made a commitment to share these larger than life personalities with the world, one story at a time to ensure we find a cure for this horrific disease.
Kevin Swan was diagnosed with ALS in February of 2012 and founded A Life Story Foundation in April of that same year. Before focusing 100% of his time on finding a cure for this horrible disease, by way of storytelling, he was the Director Of Communications for SingleHop, a rapidly growing Infrastructure Service Provider located in Chicago.
Prior to moving to Chicago, Swan spent almost 7 years in New York City. The first half of his tenure was spent on Madison Avenue (working in advertising, not panhandling) and the second half was spent creating and managing, what the New York Times called a “fledgling” television production company.
Swan’s tenacity and ability to always see the positive side of every situation are at the core of the foundation’s mission to completely abolish disease.
Julie Swan, Chief Financial Officer of A Life Story Foundation, recently retired from an impressive thirty four career at a Fortune 100 Company as a Vice President of Finance. Throughout her career, Julie held numerous positions including leading strategic initiatives dealing with difficult industry issues. She graduated from Georgetown University with a Bachelor of Science and from Nova University with a MBA. Julie has served on the board of other non profit organizations, including Women’s Foodservice Forum, Boys and Girls Club of Manatee County, Florida, T.E.A.
(Together Erasing Autism), and Boys and Girls Club of Broward County. Julie is married and lives with her husband Ken, in Bradenton, Florida and is the mother of two grown sons.
Ulyseius is a professional caregiver who has dedicated his professional career providing healthcare to those who need it. He graduated with a bachelor of biology, has been awarded a number of grants, scholorships, and presented at the Annual Biomedical Research Conference for Minority Students. He is a medical school applicant and has scored in the top twentieth percentile on the MCATs.
Uly is a great asset to A Life Story Foundation. Providing the top quality caregiving possible, ALSF relies on his services and incredible professional and personal candor.
Shaina Swan, the director of administration for A Life Story Foundation, came to Florida in 2016 from her hometown of Graytown, OH. She is married to Kevin Swan and mother to their beautiful daughter Elliott Monroe Swan.
Shaina has a BA in entrepreneurship from the University of Toledo, is a USCG Master Captain, and she is the founder of AMI Coastal Tours.
Sue has been Kevin’s full time care giver for over two years. She has moved all over the world, including Germany, but calls Atlanta her hometown. She is a loving mother of two and has been in Florida since 2011.
A naturally empathetic and nurturing person, Sue has over five years experience as a catheterization lab tech, and other medical experience. She was drawn to A Life Story Foundation to fulfill her needs to provide care for others and make a difference in the health care world.
Alex joined A Life Story Foundation in 2018. He began with the foundation knowing that he wanted to help make a difference. He was so impressed with the mission of ALSF and the work they were doing.
He is a Florida native with a BA from Florida International University. He has an arts background and specializes in non-profit administration.
Cathleen Foley, Lead Designer of A Life Story Foundation, established the ALSF visual brand identity. Her active responsibilities include developing ongoing event visual pieces, consulting on merchandise visuals, and promoting awareness through visual communications. Cathleen brings a passion for branding and design while delivering strategic visual solutions to projects in multiple industries.
With over seven years of industry related experience and currently Manager of Visual Branding at Addison Whitney, Cathleen oversees the design team. She has led branding initiatives at this global branding firm for a variety of clients such as Energizer, Microsoft, Pfizer, Carnival Cruise Lines, Sealy and Valspar. Cathleen graduated Magna Cum Laude with a BFA in graphic design from Savannah College of Art and Design.